So I do this thing where I like to hide and shrink away from the general public. I have been doing that for way longer than I thought apparently. Time to maybe stop that. So a brief, sure whatever, round up of the past little while: I'm still on Tysabri. I got a new port last Thanksgiving because the old one was a shit head. that ruined our travel plans but hey whatever. the little girl has an abundance of dirty kids in her class so I've been avoiding school for the past few weeks. I'm not feeling the need to get the flu. now I have a physical therapist, soon another one according to the urologist so that will be TWO physical therapists, a urologist and a few endocrinologists oh and was there a nutritionist last time? on my care team. yeah pathetic. whatever. the urologist said that with the new pt stuff they could likely train me to flex and release specific muscles using different nerves that actually work to fix the pee issues. that would be awesome. hopefully there are some that want to listen that still work otherwise I'm not sure what they'll do. I'm filing for disability. the paperwork is massive so I hired a lawyer. The last time I started this stuff I got some paper back where I needed to return it in however many days and I was in the hospital so those days passed and got missed. oops have to start over. this time I will just let someone else deal with that. there's no way I can keep up with all of that AND everything else that I regularly forget. Um that's all I feel like posting. I'll be back.
Tuesday, February 19, 2013
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