Tuesday, March 31, 2009

I'm some kind of expert slacker aren't I?

It's been a long time since I've written anything. Nothing has changed except I got referred to a WONDERFUL gyn. She had read my history and had a lot of info printed for me to read, although I had seen it all already it's the thought that counts. She actually introduced herself and shook my hand and sat down and had a CONVERSATION with me. What a fricking concept. She said I could do what I wanted, with the exception of a hysterectomy, so it's an IUD for me and the snip for Dude. It really is stupid for me to stress my body any more and have another surgery.

I'm doing ok. I forgot how much rebif stings but, like I told my twin sister B, it's the meds and they're powerful they're kicking ass so it works for me. Or something like that. I can't remember what I ate for lunch yesterday how the hell am I supposed to remember exactly what I said. ;)

Sunday, March 15, 2009

I'm reading a very interesting book

That is making me see things in a new way. Check it out here. It's interesting hearing real life convos with women who have MS too. The things I always thought I was silently bitching about aren't just petty and dumb. They're going to drag me the hell down if I don't try to manage them or talk about them. Never thought having to pee really bad all the damn time but only getting out a trickle was a big deal, just annoying. Yeah, it's both. Never thought too hard about why Meredith and I always wear the same earrings. Yeah, um, I"m right handed and that hand isn't always working all that well. And now what do I see. Slower typing with more mistakes b/c my right hand doesn't press down on keys like I think I'm telling it to. All things to discuss with the neuro. I'm also going to give it to Red to read. Some things I don't explain all that well (you know, the lost word thing I have going on which makes me sound like an idiot?)and this might do that for me.

So, I had a week of Rebif at the full dose. Flu like symptoms include body aches. Duh. Drink drink drink, which doesn't help the pee situation, and pop tylenol. That seems to be working. One week down, however many to go.

Tuesday, March 10, 2009

I did the full dose shot yesterday

all I felt was a stuffy nose. That works for me. Back again on the fuuuullll dose of REBIF!! Yaya! The MSLifelines nurse called me yesterday to make sure I'm on track./ I told her I hope to be on this med forever unless my liver protests. I wasn't kidding.

Things are very complicated in my head right now. I'm tired and bored and need to do something or make a change. I don't know what to do though. That's the problem. Any suggestions?

Tuesday, March 3, 2009

It's MS Awareness week...the 2nd thru the 9th

Just fyi. If you want to read something interesting check this link out...MS Awareness Week

Oh and I'm doing fine. 2 more 22 injections then I'm at the full dose again.