Yesterday's shot kinda hurt...

but at least I did it on the left side. YAYAY left side! It was the first real painful one and it bled a bit. Oh well. That's bound to happen on occasion.

Dude will be leaving. We don't know how long he'll be gone, weeks, days or months. That's mostly ok by me b/c I thought he would be going for the whole time and we know that's not likely to happen. The detailer changed his PRD so he'll be getting orders this summer and we'll be moving. If what we want is available it'll be away from here. If it's not and we stay in this area we'll still not be living in this joint. Where ever the orders say we're going is where we buy a house. I'm excited for that.

Last night I actually slept kinda ok. I still need to drink half a gallon of water then half a gallon of slurpee, my hands are not my friends and neither are my back and left foot. My stomach doesn't feel too hot. My head sucks too but I slept probably b/c I'm so tired it's not even funny.

We put Meredith down in her room on her nap blanket at 10:30. I asked her if she wanted to go lay down, she nodded yes then she went to sleep. Red went to get her when we went to bed and she was still asleep. I'm going to slowly move her bedtime back now that that seems to work and leave her in there until her first wake up. If I can get her going to bed around 9 by the time it gets crazy hot maybe we can go outside that early in the am and she can run at the park. We'lllll seeeeeee.

OK that is all. Must go look at other stuff before they get up and we need to be doing something productive.

I am definitely doing the mail order pharmacy...

b/c I'm not going to sit for 45 minutes every month to get a months worth of syringes. No way Jose. Meredith was good sitting there watching all the people and eating her snack but IIIIII don't want to do that. Today we needed to get other paperwork as well but that won't be the case every other day.

Last night was the same, tired but couldn't sleep, not feeling all that hot, numbness etc. Whatever. I can't be tired of it already. Sure I can.

May 29th almost went by with no post..

yesterdays shot was LEFT stomach. I remembered. I was up late b/c of stomach acheness. Everything else is the dang same.

EXCEPT....Meredith turned 2 today. We had a lot of people here, she hurled, ate too much, wore a rad shirt, got her clothes changed, and kept right on trucking. It was actually fun.

That's all I have time for today.

Lots of stuff going on right now...

and I'll update when I know exactly what's happening. Picking a new cereal is veryyyy stressful. ;)

Tomorrow is Meredith's 2nd birthday so I had a lot to do before she went all the way to sleep. Mopped, vacuumed, stuff. People are coming over here, not anyone who hasn't been here before but still. I'm kind of excited for it. She loves it when people sing Happy Birthday. They sang it to her today at music class and she was smilingggg. She likes it.

300mg neurontin, headaches like a MFer which really bugs me b/c I've never had headaches before, I don't sleep well even though you'd think I'd be able to get plenty odf sleep b/c there's about 9 hours every night (not in a row of course which could be half the problem) that I could sleep. Nothing is any different and today is shot day. LEFT SIDE SHOT DAY. LEFT SIDE. LEFT SIDE LEFT SIDE!

I got my Indiana Jones Adventure Spoon...

out of my new box of frosted mini wheats. I'm very dissappointed in Kellogg's. The dang spoon was at the top of the bag, OUTSIDE of the bag. What kind of adventure was that open the cardboard and woooo a plastic light up spoon that I didn't even have to dig for like it was buried treasure. Useless. They've taken the fun out of everything, PS I won't buy a box of this stuff again. It tastes ok but it gets soggy fast.

So this am begins with a super duper headache. I took an aleve and it doesn't seem to be working. Oh well, I need to give it more than 15 minutes I think...ok it's been like 47 but who's counting? I think headaches may be part of my shot reactions that don't go away. This am I'd like to go back to bed b/c I just feel kinda poopy but we have dance class so we need to be up and gone pretty soon here. I'm ready I just need to wake up the small girl.

Yesterdays' shot was accidentally in the same area as Fridays. I swear I looked at the calendar where it has a big ole LLLLLLLLLLLLLL on it for this week. This week is left. I was sitting not three feet from it when I got out my autoinjector, put in the syringe, wiped my RRRRRRRRRR arm with alceeeehaul, then snapped the thing and then thought oops. That was the same side and location as Friday. I don't have an injection site reaction so that's good but woops. Red goes I'm here SLOW DOWN AND PAY ATTENTION. I thought I was.

I've noticed that one fo my favorite things to have in the am isn't doing me any good. I used to like to drink hot tea. Duh hot tea brings up your core temp. Can't do that anymore. Cold green tea and unsweetened ice tea it is then. Oh well. I can still drink it from a mug.

So, hand numbness, headaches, feeling generally icky, back numbness is my friend again, thirsty, too much nighttime pee and it's the get up and pee or wet the bed pee, tired, 300mg neurontin. I think that's all. Oh and I need to make an appt with the eye doctor b/c I think maybe I should get new bifocals. One more thing. It can't possibly be normal to forget what you're saying in the middle of your sentence. I do that a lot lately. I also noticed that if I don't write this thing first thing in the am I forget what I wanted to write. That's annoying as well. Then there's th sure you wrote it on the calendar but you have to remember to look at the calendar. I need to figure out a way to fix that one. Can't be late for crap b/c I don't remember I needed to be someplace.

A weekday off for Red....

which is wierd. I don't think any weekday holiday has ever fallen on a non-duty day for him. He's home today and that's cool. We're going to go to some old ship poeple's house this afternoon after Meredith naps for a bar b q. The chick is very kind and knows I don't do the cooking thing so we need to stop by Kroger or Farm Fresh on the way there for something to share. It's wierd b/c everyone there is a veteran except me. The chick was deployed when she was AD and all the guys were on the same ship and have deployed together at least twice and who knows how many times on other ships or IAs. They're all under 35 years old too. A very interestig perspective.

I need to sew his new rank on his uniforms....oh yeah he made first class on the last exam. GO RED! Which means I need to get the machine down. Which means I need to pick up all the needles that will fall out o fthe box. That's my free hour this afternoon.

Last night I didn't sleep well. Not an odd thing b/c I don't normally sleep well anymore. My hands still won't wake up, I had the pee and thirst issue (I think even on the days I don't type that I have it I just don't type it), I took 300mg neurontin. And I sure did wake up with a headache. THat's all I think...oh wait, left leg issues. I think maybe he'll up my neurontin next week. I know people who are on wayyyyyy larger doses than I am. I'm not so sure how that'll help my tired thing. OHOHOH and is it wierd to forget what you're saying in the middle of your sentence? I do that often.

Headache day...

I've had a headache most of the day. I took 300mg neurontin, still have hand issues, no leg issue, no back issue. Tired like normal. I've also noticed that when I'm starved it's all worse so I've been eating more.

Today was a big ole milestone and I'll post a picture when I get them from super duper ALLLLLLLLLTHOSEEEEEKIDSSSSSSSS lady. Thanks again for being the first people we've ever left Stink Do with. Yes you all read that correctly. We took Meredith to someone's house, put her in their yard where everyone was playing, said bye bye and drove off without her. It was odd but I really wasnt nervous. We were gone for 2 whole hours.

Yesterday's shot was..

right arm and 22.something mcg. I did it on the ship too. It worked out fine b/c dude just kept Meredith on one side of his room while I did it so she didn't try to help. Usually she's in her high chair or in her room. I think it makes me more tired, or maybe I was tired alreadt. Who knows. I also had a killer headache that went away maybe 2 hours ago. No belly ache so that's good.

Someone called looking for Red at 5:50 this morning. Another dude who had duty with him who had left the ship for some odd reason. Whatever. Don't call at 5:50. Or remind me to remind Red to change his primary contact number to his cell phone. When the house phone rings that early I freak out b/c no one calls that early unless something is wrong. At least people in their right mind don't do that. Fortunately Red keeps his cell on and near his porthole so I can call when they're here and in port so I called him after the call to let him know someone was looking for him.

I was going to type a lot more...like trials and tribulations of finding non-clip foundation garments. No she hasn't weaned but we hardly NIP anymore so no need to spend $60 on new foundation garments with clips.

So here goes:

1. headache
2. 300mg neurontin
3. rght arm shot
4. thirsty
5. didn't sleep well
6. peed too much
7. numb hands and left leg (again for the leg or maybe it never went away and I am getting better at ignoring it)
8. and a partridge in a pear tree

I'm tired...

but I can't go back to sleep.

Ever start a day with a simple question that gets a smart ass reply so you get mad and can't go back to sleep? I did that today. Not good when I didn't go to bed until like 1 then got up at 6 b/c I was concerned and trying to be nice. Whatever.

The day shoudl be long sicne I'm already tired and it has hardly started. Last night sucked. I sat on the couch for awhile b/c my left leg went stupid so I had to wait until I thought I could put weight on it since Meredith was asleep on my lap. I'm crazy thirsty. I'm tired even when I've gotten sleep. Too much crap. Whatever. Oh 300mg neurontin. May as well get used to it. I need ot practice sleeping sitting up and maybe stop drinking fluids so I don't need to pee when I'm stuck. Or wear depends so I can pee myself like a decrepit old lady should.

I have a lot to do so I need to make a list. I need to do it before I take this next shot today b/c I'm betting it makes me feel like poop again. Waste another day feeling bad.

Man have I got a bad attitude. I'm going to spread it like a disease so I should warn everyone today. Bad mood alert.

I feel like poopy...

And I'm going to go ahead and be in denial and say it's not from the upped dose of the shot I did yesterday...Red did it actually in the butt on the right. The thing says you might onlt feel sick for 8 hours which is why you take it at night to sleep it off. Yeah right.

Today is a Zoe day and I'd like to find Stink some new shoes. She's growing again. One pair of snadals and her tennis shoes need replacing. Wierd b/c some of the other shoes are the same size and they seem to be ok. I guess it makes sense b/c they were made with different lasts.

That is all besides the tired, 300mg neurontin, headache numb hands thing. But my feet and back have for sure woken up.

I also think I'm going to read more often during nap time. It was mostly quiet and I think I need that sometimes.

I know why I'm starved...

the cereal I picked hardly has any calories or protein and I was only eating a serving size. I need ot go back to peanut butter toast. Even though I'm sick of it.

Yesterday we didn't go to the ship b/c when we were to leave it started this torrential downour thunder deal. We even lost power for a bit. Whatever, it came back on. That meant we had a POS dinner. Meredith didn't care really but I did.

Today is up the mcg shot day. If I'll get sick it'll be today, maybe if not it'll be June 4th when it ups again.

It's music day. I think I'm most looking forward to hot potato, cold spaghetti, mashed banana. The Wiggles suck but that song is kinda fun. Don't tell Meredith I said that. ;)

300mg neurontin, my hands are not liking me, my back isn't either. I'm not tired nor do I have a headache. The dry mouth thing is just not right. I'll ask the dentist about it as well as the neuro b/c this can't be good for my teeth.

I just looked at USAJOBS.gov and saw that there are lots of things available in the DC area that I could do. Red is right. If we go there there's no telling what might happen. If his schedule is good I may go back to work sooner rather than later. Maybe. The right job coudl also transfer to a different metro area. We shall see b/c I'm still not a fan of daycare and preschool isn't every day for like 10-12 hours. We shall see.

Yesterday was...

the last of the low dose shots. Wednesday is bump up day so I guess if I am going to start to get sick it'll be then...or maybe the next bump up day in about 2 weeks. Pretty crappy timing if you ask me. By the way it was right side belly for the shot yesterday.

It's supposed to rain today. It smells good like it will. We have dance class in about an hour.And, it's a duty day. If the rain goes away we'll go up to the ship. I don't like going up there in the rain. Red carries Meredith on-board but still. Paranoia.

Last night was the same 300mg, back weirdness, numb hands, tired but didn't sleep well and I have both a headache and a stomachache. Don't know why. Probably just because.

dyk Mozilla Firefox has an auto spell check? It doesn't like half the words I type. ;)
dyk if one of these post things looks less misspelled than normal that would be Mozilla Firefox's doing.

Another day...

Yesterday was mostly fun, actually the whole weekend was. We got Meredith some plastic shoes, crocs the mary jane kind b/c we're going to go to WOW, world of wonder, at the botanical gardens so she can play in the water. You have to wear water shoes and she didn't own any. I wonder if they'll be slippy? I have to check. Oops.

Nothing happening today. I may lay down with her at naptime only in her bed so she maybeeeeeeeeeee will sleep there. I can read while she sleeps. That works for me.

Yesterday and this am is the sam only my fot isn't numb any longer. 300mg, pee too much, no headache yay!, thirsty, still tired, hands and back are numb. And I'm not sure if I've written it before but I have some serious forgetfulness issues.

I'm taking a chance with my meds refill and waiting until my followup to get the refill. The day after is shot day for meds I don't have on hand. I can get a paper script if all else fails and find a place to buy them. Whatever. It'll work out. Last time they had them on hand and just didn't give them to me. It was the titration pack that they didn't have fo rme. They really shouldn't talk trash in front of patients. Then don't ask me how long the bx lasts. I think when i said I have no idea I was just diagnosed today I freaked the chick out. See that's what you get for talking trash. I think I've said this all before. Oh well, who cares.

PS Ms Gimp Knee, we're seriously good for entertainment. I'm not kidding. PLus we can bring good stuff to eat and stuff. ;)

Look at what Red did...

Before
During
After

Meredith liked my toes, I got a pedicure, so we got polish and she got her toes professionally done by Dada.

We got the little girl a tricycle...

and went to a bunch of random places yesterday. Today might be more of the same or nothing at all. I'm not sure yet.

300mg neurontin, the last bc pill fo r most of the rest of the year...the rest is the same except I don't have a headache and I think I slept ok.

It's Saturday...

and it's supposed to be a nice day. Red isn't home yet from duty so somethign evil must be happening. I hope it doesn't make him cranky b/c I want to go do stuff and if he's in a mood he won't want to go.

Yesterday we had a nice lunch with a friend and her daughters then went to Target and Babies R Us. At Target we saw a tricycle that Meredith can actually reach the pedals. I don't know if she shoudl be able to pedal but I think we're going to get it and let her try at least. She seemed to like it. At BRU we got new sippys with straws only I didn't see that they are not dishwasher safe so they may not last in this joint. I also got some shorts to use as pjs for Stink. When she's standing they're just fine but when she sits or lays down you can see her diaper and onesie. Not cool. Why do they make shorts for teeny people all short and stuff? That's not even appropriate. Good thing they're not to be worn outside of the house or else I'd have to toss them.

I woke up b/c my hands were itching, like they were waking up. Nope. They're just feeling wierder. I did my shot yesterday in the left side butt. I thought that I should lock up the small girl while I did it though b/c when she's in the high chair at the table when I do it she copies me. I didn't need her running around then trying to help. No need for a broken off needle in my body. I wonder what they'd do for that at the ER. I don't even want to know actually. It didn't take long so she didn't fuss when I put her in her room. It seems like if you tell her why she's going in there she doesn't fuss, UNLESS, it's b/c she doesn't want to act right. Can't blame her though.

So I peed literally every 2 hours last night. Like racehorse peed. Numb foot, numb hands that also had that tingly thing, numb back, numb lips which is hella wierd. Crazy thristy. 300mg neurontin. Oh and I only have one bc pill left. I'm not refilling it b/c there's no need when there's a deployment on the horizon. I'll get more or soemthing different in July when I go for my annual exam. Oh joy of joys. I had a headache when I went to sleep but didn't wake up with one so that's good.

Time to make noise so Meredith wakes all the way up.

Isn't there some kind of cycle..

you're supposed to go thru when you find out that you've got a chronic illness? Like with deployment you know you get cranky, and sad, then you're fine then you get cranky again. You know?

I was just informed that being angry isn't going to help things. See, too many things are happening all at once. I'm not allowed to be angry? How is that? My life is different forever. How does that not make a sane person angry on occasion?

On a happy note, it hasn't rained since after we left the house this am. Good for a ship visit on duty day.

Today we're going to lunch with a friend...

and it's duty day so dinner is at the ship. It's rainy and yucky but whatever.

I feel the same only I had the pee issue, and a headache which I still have. I totally forget what I'm saying all the time and I don't know the word for easy crap. Maybe that's b/c I'm tired. Wait, no speculating.

I made my next appt which really should just be a quick how are you and some bloodwork. I HAVE to get my refill on this day so I may go early and sit at the pharmacy with a number to see if it's in stock then if not I'll get a paper script and go to whichever places on the way home. It's during naptime again, it's like they never have anything NOT during naptime. Hopefully she's ok b/c I can't hold her during a needlestick or let her walk around. We shall see. Oh, where will Red be and how come he can't just take her for a walk? He'll be DEPLOYED by then. Useless. Oh well, maybe this one will be shorter. Uh huh, I'm not holding my breath. I have badittude.

I need to get going or we'll be late.

Maybe I should switch to STD?

The doctor called. This is apparently something I need to just get used to. Funny b/c my other two friends whith the same kind of MS say their doctors treat so it doesn't get worse whereas I was told I need to get used to this happening and they don't treat UNTIL it gets worse.

Anyone who wants managed healthcare for the rest of the country is a MORON. Managed healthcare and chronic illnesses don't mix. That's my political statement of the day.

This sucks. When Red gets home he's going to be mad. I will be nice and not mention that he's the one who thought the Navy was a good idea. I was just stupid and was supportive instead of saying no way crazy man. That would be a low blow b/c I could've said no so I won't say it.

interesting websites...

I think this is what's so wierd. I look the same as I always have and in theory I am the same but really I'm not.

http://www.invisibledisabilities.org/ The Invisible Disabilites Advocate I just found this one but it looks interesting.
http://www.butyoudontlooksick.com/ But You Don't Look Sick Mostly b/c the stories make me appreciate that for now I'm mostly ok even if there are too many ads on it.
http://www.nationalmssociety.org/index.aspx This one is necessary for good info...I belong to the chapter here.
http://www.mslifelines.com/ The website specifically for my med. They're pretty useful on the phone as well..my nurse came form here.

I'm calling for the 3rd time...

I think the corpsman who told me to go to the ER may not have given Dr S my message. No one asked him to make that call if that's what happened. The chick just now on the phone said they've been having issues with their message system. If that's indeed true then maybe you ought to write them downnnnnnnnnnnnnnnnnn. What a fricking concept.

Obviously I feel the same. I had 300mg of neurontin and a left side arm shot last night.

I made my followup for bloodwork appt already (rebif has the potential to screw with your thyroid and your liver). Told Red when it is and he's like that's the exact date and time we leave so I changed it. I know he doesn't like to see us standing on the pier when they leave but I need to do that. It's a thing for me. Plus I need pictures for the scrapbook.

I need to wash my hair...

and the doctor hasn't called yet. Red isn't too happy about that. I can't make him call geez.

We have music class in a few hours, I feel the same and this is another shot day.

I have nothing else to write.

No call back from the doctor just yet...

but we did go to the first of 4 Mommy and Me Bellydancing classes. I sat and took pictures while Meredith copied Ms. Erika. I think she really liked it.

I feel the same as I did this am. I took 300mg of neurontin last night and I had my left side belly shot too...yesterday.

I'm up...

b/c my lips are numb, my left foot is numd, the middle of my back is numb, my hands are numb. I'm thinking this is a flare. Damnit. Damnit. DAMNIT. This is NOT supposed to be happening.

something wierd enough happened that I'm posting in an off time

my left foot, the big toe and the one next to it are numb and tingly. I can feel the tingles but not when I step down. Kinda like when my right thumb and finger next to it went wonky last year. Mannn, I can't have numb feet. I guess I need to call and leave a message with Dr. S. POS.

I got a new bag..

yesterday. It's pretty cool. I was tired of my shoulder bag so I got a more purse-like one. It fits all our stuff too. Today I got Red a new camera to take with him. We also went and played in the Mall play area. Most every kis was little so I let Meredith run on her own more. She had fun.

Red is in class at the close base this week which is cool. He has duty today and Friday though so after class he'll go to the ship. Tonight he won't stay there though since he has class tomorrow but Friday he will. Saturday we're going to Yorktown to see the rad twisty bridge though. He said there's a rad small town there to see too. Works for me.

I made the fronts of Stink's Birthday invites. I'll have to take a picture. I need to finish them b/c I need to hand a few out tomorrow at our first Mommy and Me bellydancing class. She'll like the class. Me? Not so much.

Today is shot day number 3. I'm going to switch to the left side and start with my stomach I think.

300mg neurontin. No headaches but crazy tired. Pee. Thirsty. Today it's my right hand that's not happy hence the reason I won't be online during naptime. I'll watch 27 Dresses. Red rented that and Juno yesterday. Juno was rad. 27 Dresses is for me. Poor guy. On occasion I'm a girl.

It's Mother's Day...

and I had a doctor's appt. It's ok I did it on purpose. IT was with Dr McA. He's the one who worked to get me the neurology referral in the first place. I needed to aks him a few questions and say THANK YOU for working for me like he did. I think I embarassed him. He said I'm glad you got answers but not necessarily what the answer is although he is the one who guessed it last year. He was right.

We're going to go to the NEX when Stink wakes up and to the ship to drop some crap off that Red doesn't want to carry from far away like he'd have to on a normal work day.

Last night I had the back numbness thing. Not sleeping well again. 300 mg neurontin. My hands do feel numb again. Peeing too much.

The small girl is awake. I'll bbl.

Red did the shot yesterday..

and did a good job. It only stung a teensy bit likely b/c we didn't wait for the alcheehaul to dry all the way. Whatever, no broken off needles or nothing so that works for me. I'm not having an side affects. Yesterday I felt a little bit achy, like am I getting sick achy, about 4 hours after the shot so I took a tylenol and that went away.

Today we're going to got o the mall so I can pick a new bag to hold all of Stink's crap b/c I'm tired of the one I use. I'll keep it b/c likely I'll get a PURSE, yes that's right a PURSE, but Red won't carry a purse, duh, so I'll keep this one in the car for him. Also going to Gymboree to see what 3T stuff they have for fall. I keep forgetting she'll be in that size. Some of her pants now are too short so as long as they have adjustable waists we'll be good to go. PS I HATEEEEEEEEEEEE going to the Mall on the weekend but it's necessary.

I woke up with a headache, went to bed wiht one too. had 300mg neurontin, the right side butt 8.8mcg shot was Friday, 2 tylenol one before one several hours after the shot, some numbness in my hands (I'm betting Dr. S says up the neurontin again), and dry mouth. I also got up 4 times to go pee.

Just a day...

I woke up with numb hands so not so sure what that is all about. Peed too many times last night but toehrwise slept half decently. 300mg neurontin. Headache. Maybe this is the way it's supposed to be. Oh well we'll see.

We went to Walmart b/c they sell bananas and I also needed a new rod for the shower curtain. POS apt rod won't hold the new curtain I got with pockets for the toys and other crap. I made a tile thing for Meredith's room with the tiles of her name that Red got in Spain last year. The I painted some flower little peg things so she can hang her hats or whatever else in her room. I'll mount them low when she wakes from her nap.

Today is shot day 2. It'll be right side butt. Red will do it this evening.

I am a Category 3 EFMP..

which means he will be going and if I have big time issues maybe he'll get sent home. Good thing we're prepared. It's what I expected. Oh, it also means that likely we won't ever be able to be stationed overseas. It says Usually. I think that means no.

It's a good day..

besides the fact that I am up early b/c Red's IT1 called this morning to see if he had left yet when he shoudl have already been at the ship b/c he had been gone for like 30 minutes I slept for a long time and I slept well. In theory I could go back to sleep but I think I'll stay online then not get back online most of the day. Maybe. I have a lot of stuff I can do today. That's motivating me.

I have no shot issues. Maybe it made me tired last night, maybe I already was. Regardless, I don't feel any flu-like symptoms which is excellent. I also only go tup to pee once last night which is also excellent.

I don't have a headache, I do have dry mouth. Right now I am not tired. No wierd legness. Nothing.

I refilled my neurontin, rad and another point for Dr S bc he changed my script in the system so I could get my refill faster since he said I could take 300mg instead of 200mg without my even having to ask. Normally they won't let you refill so quickly when you should have more pills left. Works for me, this dude is on the stick. They had better not deploy or PCS him before we leave first!

Meredith has been ready for bed at like 10:30 lately. I've been complaining about it but it works fo rme b/c if I go to bed too, yeah yeah yeah you're right Red, I feel much better. There's something to be said about getting to sleep earlier in the night. I've never done well with late nights. We'll work on making it earlier but I'll take 10:30 for now.

Shot day number 1

Today my nruse Susan came to show me and Red how to do the shots. She seems nice enough and had a lot of information for us. I did one shot and it didn't hurt. I was kinda scared that it would, even sat up last night doing math in my head figuring how many times I was going to have to do this for the next ~60 years or more. I said, "It didn't hurt. I thought it would hurt." She said, "then you did it right b/c if you hadn't it would've hurt."

One down however many more to go.

I'm going to add where I did the injection now to my list of stuff.

1. Right arm for todays injection although the rest will be done in the evening. makes sense that she wanted to see me do the first one. (I forgot to have Red take a picture of the first injection DANGIT that's scrap worthy material)


2. pee issues


3. tired


4. forgetful


5. I had a wierd back tingly thing last night when I was just laying in bed. Can your back go to sleep?


6. both hands started going numb yesterday


7. I took 300mg neurontin

So here's a few pictures, I guess they're on top, if I can figure out how to add them for posterity. I got a basket to hold all my stuff and needed a few other things to do my shots regularly. I did buy a sharps container although NICE LADY WHO CAME AND PLAYED WITH MEREDITH THIS AM you know who you are ;) said she'd get me more. Please do still. I don't think this one will hold as many as it says it will.

Some teeth are coming...

I'm thinking some big back teeth. Poor girl has a fever of 101.7 in her armpit with motrin. Last night I didn't want to wake her for tylenol but today she'll get it too. No Montesspri check out for sure and likely no music class tomorrow I'm thinking... just in case. I'd be pissed if someone brought their kid and weren't sure exactly what was wrong but they had a fever.

She and Red are asleep, ok Red is laying there and she is asleep. She went to sleep sitting up leaning on me at 10. That's hella early for her. I should've known she wasn't feeling all that hot.

Anyway, today is a stay home day. We went and got stuff last night at BJs and ate at Olive Garden so we're prepped to sit here all day. Applesauce. She'll eat that. She'll nurse. She'll be ok.

No headache last night, took the normal neurontin and I've noticed my legs going numb if I sit in bed too long. Kinda like my can't get up from the couchness. and I'm not leaving them still or nothing so they're not sleeping. Dry mouth, tired even though I went to bed much earlier than normal. No crawlies on the legs though.

Today has been busy...

so much so that Meredith started her nap an hour late. Besides the fact that she dumped her sippy on her lap so she looked like she wet her pants when we went to the hospital to get my meds, she was actually nice all morning long. YAYAY for nice.

I started out up early and having a chat with one of Red's long time friends who told me a story. The story of how he has MS too. That was cool b/c I wouldn't have guessed it. Thanks dude if you ever see this. That was a good way to start the day.

Then I had a Zoe appt. Meredith was there the whole time with new crayons and a new book to color in and some stickers. She was nice the whole time. Zoe says good job for handling everything the way that I am. 3 weeks I'll go back to her.

Then, after having dealt with the stupid hospital again, I had my neuro write me a paper script for the rebif since the nurse will be here Wednesday morning. He did and had it waiting for me but miraculously they got my meds in at the pharmacy. I think they didn't think I'd actually ask for a paper script b/c they're supposed to be able to provide what you need if perscribed by one of the MTF doctors. Morons. I'm on to them. If this stuff works for me, no reactions that I can't handle and the like, I'll order it from the mail order pharmacy. I'm not dealing with the run around every time I need a refill.

Also, I found a Montessori program that Meredith might be able to do for part of the summer. We're going to check it out tomorrow. Hopefully we both like it.

Anyway everything is the same except I had no headache last night.

1. tired
2. crawly leg feeling
3. 300 mg neurontin
4. I think that's all
5. I can't remember...wait that's one. I can't remember.

I think I want to move...

even if we're not going to be here for another whole year. Meredith won't last this summer if she can't get outside and I've noticed that I can't do the heat. It was only like a high of 81 yesterday and I turned the air on. We even came home from the park, well that was half because she did her new scream like I'm being stabbed trick when I said get down it's time to go home and eat lunch and no you can't go on the bigger slide b/c Dada is not here to ctch you on the bottom. How mean is that? It's not that's how mean it is. Oh wait add to that please stop throwing cedar chips.

We can get out of this lease right now b/c of deployment orders and we can get out of the next lease b/c of orders to move. Works for me. We need outdoor space where she can play and I can sit in some kind of shade and watch her. That's not at the park with roads on two sides or a park witha lake on one side and a road on the other. That's in a fenced in backyard. Stop is not a word she likes and I am no longer a sprinter especially when it's hot. We can only have so many scheduled play things. She likes grass not carpet and you get up when it's your turn except when you're doing the hot potato/mashed banana dance.

I'm going to add 4 new things to the normal list.

1. I do have heat sensitivity...I knew that before only didn't know why it was happening
2. I swear something is crawling on my legs all the time...and no I'm not dirty so I know there's nothing there
3. I keep forgetting crap...that's been happening for a little while and I thought it was because of number 4 which issss...
4. Tired. More tired than I think I should be. That could be for 101 different reasons but I'm not supposed to speculate. I'm suppose to write it down so I am.

I think...

I will mention the thirst thing at my next doc appt. I don't see that as being a side affect of any of my meds. Is it effect? Whatever. Otherwise everything else is the same.

I talked to an old frined named Gail for a couple of hours last night. She was diagnosed before she quit her job with the commonwealth, I knew her from that lab...she was the gunshot residue analysis person, to move to PA to work for another forensics lab. She told me a lot of good info then we just chatted. It was nice to talk to her. The biggest thing she said was to ASK FOR HELP WHEN I NEED IT. That's not an easy thing to do. I remember swearing I was going to drive myself to the hospital when I was in labor. Yeah um that wouldn't have worked. You'd think I'd have learned. Obviously I didn't.

Dude has duty both days this weekend. Tomorrow he can take a bit of time to go to the gym so if he's game I'll take Meredith over there and they can go in the pool. When she's had enough we'll wtatch him swim laps. She usually likes it so maybe that'll work.

That is all.

Same as yesterday only...

I got a haircut and my autoinjector came by fed ex. They sent a free travelling case too that has this cooler thing in it like a lunch box. Pretty cool. I also got a book that was recommended to me by a friend who was diagnosed a few years ago when we worked together. So far it looks helpful.

We skipped music yesterday to go to Portsmouth to turn in some paperwork...

but we went to a make up class this morning. I think I liked it better b/c te class was smaller. Oh well. Meredith likes it regardless so we'll stick with our normal time.

Afterwards we went to the Mall to return 2 of the 3 shirts I got yesterday. I tried them on and just didn't like them. I can't find exactly what I want and it's bugging me. Then we went to Lowes to get red paint for the new stop stool. Get it. Red for stop. Yeah cool huh don't be jealous.

Anyway the additional info is the same as normal:

1. too much pee at night
2. 300mg neurontin
3. dry mouth
4. headache

The shot nurse is coming next Wednesday at 9:30. I haven't even gotten my meds from the hospital yet or the autoinjector from the pharma company. Better hurry up morons!